Director of Community Programs

About Amyloidosis Research Consortium

The Amyloidosis Research Consortium (ARC) is a 501c(3) nonprofit organization founded in 2015, harnessing the power of collaboration and innovation to advance science and both improve and extend the lives of those with Amyloidosis. We are dedicated to transforming the way research is being done and focus on what will have the most significant impact on improving the lives of amyloidosis patients. We forge collaborations across industry, research, clinical care, and regulatory to address unmet needs and accelerate the discovery of new treatments. ARC empowers and supports patients by ensuring they have access to the best quality care and information.

To learn more about ARC, visit http://www.arci.org.

About the PositionARC is seeking a dedicated and experienced professional for the position of Director of Community Programs. In this full-time role, you will lead the department and manage a comprehensive portfolio of patient support and healthcare provider education programs. You will oversee and mentor a small team, cultivate a collaborative culture that fosters innovation and impact, and expand ARC’s programs to support a diverse community of patients and healthcare providers.

As a member of ARC’s leadership team, you will report directly to the President & CEO, and play a crucial role in achieving the organization’s goals through strategic planning and the implementation of key initiatives. Join our motivated, thoughtful, creative, and friendly team to make a meaningful impact in the rare disease community.

ResponsibilitiesProgram Development And Management

• Oversee the creation and execution of ARC’s patient support and healthcare provider education programs, ensuring they are effectively meeting the community's needs.
• Supervise the Community Programs team to ensure programs are executed optimally, setting performance standards, monitoring prograss, and implementing improvements
• Collaborate with internal teams and external stakeholders to align and enhance programs with ARC’s strategic goals, and evaluate and develop new initiatives to drive departmental growth.
• Develop and manage the budget for patient support and healthcare provider education programs and initiatives, ensuring effective resource allocation.
• Prepare and present regular reports on program outcomes, impact metrics, and budget expenditures.
• Lead the creation of compelling funding proposals for sponsors and grant submissions.
• Collaborate with the development team to align funding opportunities with organizational priorities.
  
  

Stakeholder Engagement

• Develop and execute strategies to engage and support a broad, diverse community of stakeholders.
• Cultivate relationships with key stakeholders including patient organizations, healthcare providers, and rare disease organizations.
• Collaborate with international stakeholders to enhance patient advocacy efforts.
• Ensure messaging aligns with ARC’s mission and values.
  
  

General Responsibilities

• Maintain a current knowledge of amyloidosis, treatment options, and the research landscape.
• Collaborate with other teams to maximize program impact and ensure they meet patients’ needs.
• Perform other duties as required and appropriate to the position.
  
  

Skills And Experience

• A Bachelor’s Degree with 10+ years, or a Master's degree with 7+ years of proven experience in the nonprofit sector or related industries, demonstrating a solid background in strategic management and operational leadership. Experience in patient support and advocacy, as well as program development and management within rare diseases or healthcare, is highly desirable.
• Proven experience in managing and mentoring direct reports, fostering a collaborative and productive team environment.
• Excellent communication and interpersonal skills.
• Ability to professionally represent the organization in written and verbal formats.
• Ability to work effectively in a collaborative, multidisciplinary environment.
• Passion for non-profits, health equity, patient engagement, and cross-sector collaboration. Ability to be flexible, compassionate, and creative, while maintaining a sense of humor.
• Experience utilizing MS Office, Salesforce, project management tools such as Wrike, Smartsheet, or Microsoft Project, and document management systems such as Box.
  
  

This is an exciting opportunity to work at a growing organization, with a team that values a diversity of experience and demonstrates an unwavering commitment to the amyloidosis community.

If you are driven to advance patient-centered initiatives in rare diseases and possess the leadership skills to drive ARC’s mission forward, we invite you to apply and join us in making a meaningful difference.

Equal Employment OpportunityWe are proud to be an equal opportunity employer – and celebrate our employees’ differences, regardless of race, color, religion, gender, sexual orientation, gender identity, national origin, age, disability, or Veteran status.

Additional InformationRemote Work Opportunity - Work Schedule & Expectations

• Seize a fully remote experience with this dynamic full-time, exempt position requiring 40 hours per week.
• Embrace the flexibility of working from the comfort of your home, Monday to Friday, 9 am to 5 pm Eastern Time, fostering seamless collaboration with the rest of the team.
• Anticipate occasional travel for exciting events and meetings, adding a dynamic element to your remote work journey.
  
  

Comprehensive Benefits Package:At ARC, we prioritize the well-being and work-life balance of our team members, offering a comprehensive benefits package designed to support our employees’ overall health and future goals. Here's what our package includes:

• Paid Time Off: Enjoy a generous package, featuring 4 weeks of vacation time, 40 hours of sick leave, 10 holidays, and 1 floating holiday. Plus, enjoy the PTO Free Days during the extended holiday break from Christmas to New Year’s Day.
• Medical/Dental/Vision: Access a range of contributory medical, dental, and vision plans from your start date, with no waiting period for new hires. Benefit from a substantial 65% employer contribution towards both individual and family medical and dental insurance plans.
• Life/Disability: Rest easy with our 100% employer-paid Life and AD&D plan, as well as Short-term and Long-term Disability coverage.
• Flexible Spending Accounts (FSA): Choose from Health FSA and Dependent Care FSA options.
• 401(k) Retirement Plan: Plan for your future with our up to 4% employer match on the 401(k) retirement plan.
• Additional Benefits: Explore other offerings, including the Employee Assistance Program (EAP), Worker's Compensation, and more.
  
  

The Pay Range For This Role Is

110,000 - 130,000 USD per year(Remote)